Our unborn baby, whom we've named Caleb Elijah, has been diagnosed with six congenital heart defects. The most severe is tricuspid atresia. The others are small right ventrical, ASD (atrial septal defect), VSD (ventricular septal defect), transposition of the great arteries, and pulmonary stenosis. His due date is August 17, 2005. He will have surgery within in a few days of birth. His next surgery will be at four to six months. The third planned surgery is a Fontan operation; this will take place at four to six years. These surgeries will take place at Miami Children's Hospital.
We have been reading The Parents Guide to Children's Congenital Heart Defects by Kramer and Maurer.
If you are in a similar situation, we would love to hear from you. Please email us if we can serve you in any way.
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